An Ran
Central sourth university , Xiangya nursing school , China
Title: Caregivers’ experiences of children with leukemia: a systematic reviews of qualitative studies
Biography
Biography: An Ran
Abstract
Objective: In order to provide a basis for continuous care in hospitals, communities and families, we systematically review and synthesize the relevant studies on the inner feelings and emotional experiences of family caregivers of leukemia children.
Methods: The qualitative researches on the family carers’ experiences of leukemia children were retrieved from following English databases, including Cochrane library, PubMed, Medline, Embese, Web Of Science, and Chinese databases, including China Biology Medicine disc, CNKI, Wan Fang and VIP were retrieved from databases establishment to February 2021. Quality evaluation criteria for quality research in Australian JBI evidence-based health care centers（2016）was used to evaluate the qualities of studies. The results were integrated by using pooled integration method in Meta integration.
Results: A total of 78 results that were extracted from 29 studies, which were summarized and integrated into 12 new categories. Three results were synthesized from 12 categories above. Integrated Finding 1: Caregivers have complex psychological experiences, with diverse and stage-specific features of psychological experiences; Integrated Finding 2: Caregivers suffer from economic, social, and psychological pressures, and face difficulties such as role adjustment and impact on family life; Integrated Finding 3: Caregivers have weak social support systems and have diverse psychological and social needs about disease-related knowledge, medical equipment and technology.
Conclusions: Caregivers of children with leukemia are under pressure from multiple sources, and have diverse needs. Relevant hospital, community, and institutional staff should understand the psychological experiences of caregivers, to provide appropriate support and guidance to enhance caregiving capacity and promote the physical and mental health of caregivers.